Systemic mastocytosis (mas-to-sy-TOE-sis) is a disorder caused by a genetic mutation that results in an excessive number of mast cells in your body. Mast cells normally help protect you from disease and aid in wound healing by releasing substances such as histamine and leukotrienes. But if you have systemic mastocytosis, excess mast cells can build up in your skin, around blood vessels, in your respiratory, gastrointestinal and urinary tracts, or in reproductive organs. When triggered, these mast cells release substances that can overwhelm your body and result in symptoms such as facial flushing, itching, a rapid heartbeat, abdominal cramps, lightheadedness or even loss of consciousness. Common triggers include alcohol, temperature changes, spicy foods and certain medications.


Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Newbies Guide to Mast Cell Disorder

Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information

New Member Introductions

New members, start your experience here. Introduce yourself and share your story. Let us welcome you

General Discussion

General discussion about a wide range of topics related to Mast Cell Disorder

Emotional Support

Having a bad day? Are you flaring? Have your friends and family found their earplugs? Well, this is the place to let it rip! We are here to listen and we get what you are going through. The is is a safe place to share your feelings and to unburden yourself.

Recommend a Doctor, Therapist, or Clinic

Want to recommend a doctor, therapist, or clinic? Positive review only, please.


News From Bens Friends


Events of interest to Mast Cell Disorder Patients and our Communities. Just email to have the staff add your event.

Complimentary Therapies

Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment

Prayer and Healing Energy Requests

A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.

Site Feedback

Discussion about this site, its organization, how it works, and how we can improve it.


FAQ about the Mast Cell Community

Bens Friends Apps for mobile Devices

Bens Friends Apps for mobile Devices